Month: June 2021

International Neonatal Screening Day

by Whitney

CIPO is thrilled to announce the launch of the first International Neonatal Screening Day (INSD) on June 28th. IPOPI (the International Patient Organization for Primary Immunodeficiency) has been working in partnership with the International Society for Neonatal Screening (ISNS) and the European Society for Immunodeficiencies (ESID), under the Screen4Rare initiative to bring about this special day. To…



IMPORTANT: Immunodeficiency Patient Research Survey

by Whitney

June 8, 2021   A new treatment for immunodeficiency patients is being submitted to the Canadian Agency for Drugs and Technologies in Health (CADTH).   Patient organizations are allowed to submit input about patient experiences, but we need your help.   Please take 10-15 minutes to complete this survey about your experience with your treatment. Your answers…