Author: Whitney

World PI Week 2022

by Whitney

April is PI Awareness Month April is the national awareness month for Primary Immunodeficiency and April 22-29 is World PI Week. With your help, we can raise awareness and increase the understanding of primary immunodeficiency diseases (PI), which can lead to earlier diagnosis and better care for those affected by PI.    World PI Week  April 22nd…



CIPO Virtual Conference – September 10-11

by Whitney

Join us for CIPO’s first virtual conference on September 10 & 11! The sessions will focus on patient experience, COVID-19 (medical research and personal patient experience of COVID-19), as well as some special sessions requested by members.  Included in registration: Access to all sessions and virtual networking events a CIPO t shirt a CIPO water bottle a…



CIPO Turns 25

by Whitney

2022 is CIPO’s 25th Anniversary! We are so humbled to have been able to continue to provide services and programs to the immunodeficiency community across Canada over the past 25 years. To celebrate this milestone, we want to celebrate you – our members and the community that make our work possible. We will be holding…



Holiday Giving Campaign

by Whitney

This holiday season, support CIPO and send a child with PI to camp! CIPO’s Family Retreat at the incredible Zajac Ranch in beautiful Mission, BC is designed specifically for children and families with medical needs. Located on the shores of Stave Lake in beautiful Mission, BC, Zajac Ranch for Children is situated on over 40…



Update on VISID Study

by Whitney

CIPO members who enrolled in the VISID study may be experiencing delays in taking part. Some members may not have had any response from study coordinators since the initial email upon registration.  Some study sites are currently experiencing logistical issues regarding contracts and ethics approval. Currently, only 7 sites are actively recruiting patients with more hopefully…



Notice to All Members

by Whitney

Please be advised that the Canadian Immunodeficiencies Patient Organization (CIPO) was unable to hold it’s Annual General Meeting on October 23rd due to lack of quorum present.    With this in mind, CIPO sends notice of the proposed changes to the current bylaws to all members with this letter. All members have 60 days from the…



CIPO Merchandise now available!

by Whitney

Our store is LIVE!! Now is the time to buy your CIPO swag and show your #plasmapride! Use code BUY1 for 10% off 1 item BUY2 for 15% off 2 and BUY3 for 20% off 3+ https://ciponational.myshopify.com/ #onlineshopping #retailtherapyy



CIPO in the News

by Whitney

We are happy to report that CIPO’s efforts to include SCID in BC’s newborn screening program has resulted in an op-ed in the Province newspaper. Please see the link attached: https://theprovince.com/opinion/op-ed/dawn-shirley-whitney-goulstone-why-b-c-needs-to-expand-its-newborn-screening-program



Update on 3rd Doses

by Whitney

Thank you! Based on CIPO’s advocacy, emerging data and the recent statement from the NACI, most provinces in Canada are now granting access to 3rd doses of MRNA COVID-19 vaccines to primary immunodeficiency patients immediately. Thank you to all of our members who took part in our recent campaign and wrote letters to your provincial…