Author: Whitney

COVID Antibody Study in Immune Deficiency Patients

by Whitney

CIPO is proud to partner with the Ottawa Hospital and lead investigator Dr. Juthaporn Cowan as they launch the VISID (Vaccine Immunogenicity and Safety in ImmunoDeficiency patients) study. This study which will look at effectiveness, safety and immune response in immune compromised patients who have, or plan to receive, a COVID-19 vaccine has launched today…



International Neonatal Screening Day

by Whitney

CIPO is thrilled to announce the launch of the first International Neonatal Screening Day (INSD) on June 28th. IPOPI (the International Patient Organization for Primary Immunodeficiency) has been working in partnership with the International Society for Neonatal Screening (ISNS) and the European Society for Immunodeficiencies (ESID), under the Screen4Rare initiative to bring about this special day. To…



IMPORTANT: Immunodeficiency Patient Research Survey

by Whitney

June 8, 2021   A new treatment for immunodeficiency patients is being submitted to the Canadian Agency for Drugs and Technologies in Health (CADTH).   Patient organizations are allowed to submit input about patient experiences, but we need your help.   Please take 10-15 minutes to complete this survey about your experience with your treatment. Your answers…



New Cuvitru and Gammaguard Websites

by Whitney

Takeda Canada, the manufacturers of Cuvitru and Gammaguard, have created new product specific websites for patients using these products with resources and videos.  www.cuvitru.ca www.gammagard.ca  They have also created a non-product specific site for people living with immunodeficiency: “Living With ID” www.livingwithid.ca Be sure to check out the sites!



Hizentra Announcement

by Whitney

Canadian Blood Services and Hema-Quebec have announced that Hizentra 20ml (4g) will be available in pre-filled syringe. The transition of the 20ml format from vials to pre-filled syringes is expected to be completed by the end of June 2021. This transition will mean that Hizentra 20ml (4g), 10ml (2g) and 5ml (1g) will only be…



Support CIPO with Handmade Jewelry

by Whitney

CIPO would like to give a HUGE thank you to our amazing volunteer in BC, Tara. Tara and her sister own and operate a handmade clay  jewelry company, “Sweet Sorella”, and make beautiful pieces inspired by Italy. Sweet Sorella will be donating $1 from each pair of earrings sold to CIPO. Please check them out…



New Program Alert

by Whitney

CIPO’s new program Family Zone is excited to launch it’s first ever event – Family Bingo Night! Join CIPO on May 14th for a fun night of bingo hosted by Spiderman and Princess Elsa. This event is free thanks to our generous supporters of Family Zone and will include prizes.  To register, email info@cipo.ca Date/time:…



Thank you for listening!

by Whitney

The first season of CIPO’s podcast, “Slice of PI” has finished and our host, Bryan would like to say “Thank You” to all of our dedicated listeners who helped to make our first podcast such a success. If you missed the podcast the first time around, you can catch up on all 10 episodes on…



NEW – Family Zone Newsletter!

by Whitney

CIPO is excited to announce the creation of our new Family Zone newsletter. This quarterly newsletter is part of our expanding services for our family and pediatric programming. The newsletter includes a spotify playlist for both tweens and teens, a Lil’Stripes section for our youngest members, parent support information, event information and more. Check out…



World PI Week

by Whitney

Celebrate World PI Week 2021 with CIPO! World PI Week is April 22-29 and is dedicated to raise awareness of primary immunodeficiency around the world. This year’s theme is plasma sufficiency, and CIPO is proud to take part and spread the word on the importance of plasma and need for plasma products in Canada. Join…