Category: Uncategorized

Board Nominations – application to join the CIPO Board of Directors for 2018-2020 term

by Anna

The Canadian Immunodeficiencies Patient Organization wishes to invite interested candidates to submit their application to join the CIPO Board of Directorsfor 2018-2020 term.   We are particularly interested in hearing from individuals whose experience and skill set includes one or a combination of the following: Finance, accounting, bookeeping Grant writing Legal Public relations, communications Nonprofit, governance,…



CIPO’s Position Statement on Private Insurance and Blood Products

by Anna

Canadian Immunodeficiencies Patient Organization position statement on private insurance and blood products In April, CSL Behring listed the subcutaneous immune globulin product, Hizentra, with private payers for reimbursement. As of today, it has been approved on some open plan formularies. At this time, CIPO is unable to support the listing of plasma protein products with…



IPOPI Position Statement

by Anna

Details of the IPOPI position statement regarding access to immunoglobulin therapies for patients living with a primary immunodeficiency can be found here: IPOPI-2018-Position-Statement



Survey On Switching Immunoglobulin Products (IG)

by Anna

IPOPI are seeking the input of patients living with primary immunodeficiency and parents who are taking care of a child with a primary immunodeficiency (under the age of 18 years), using IG replacement therapy who have switched to another brand or mode of administration (intravenous, subcutaneous, facilitated subcutaneous) during the last 2 years. The survey…



SAFE Project Survey (funded by Canadian Blood Services) – Chance to be entered into the draw for an iPad Mini!

by Anna

Safety, Acceptance, Fairness, and Equality (SAFE Project): Acceptable Risk and Donor Selection This study, conducted by researchers at McGill University and the University of Nottingham (funded by the Canadian Blood Services), seeks to better understand people’s attitudes related to blood donation and the current limits on accepting blood from men-who-have-sex-with-men (MSM). In recent years, the…



IG TRANSITION UPDATE – APRIL

by Anna

April 10th, 2018 Update on Immune Globulin Products in Canada Dear CIPO member, Since late 2017 we have been updating our membership in regards to changes to certain immune globulin products. We know that some of you have voiced your concern about how these changes will affect you and your care. Over the last six…



IG Transition Update – March

by Whitney

March 8th, 2018   Update on Immune Globulin Products in Canada   Dear CIPO member, Over the last few months, we have sent three letters updating you about changes that are taking place across Canada in regards to certain immune globulin products. We know that some of you have voiced your concern about how these…



IG Transition Update – February

by Whitney

February 1st, 2018   Update on Immune Globulin Products in Canada   Dear CIPO member, On November 2nd and December 19th, we sent letters updating you about changes that are taking place across Canada in regards to certain immune globulin products. We know that some of you have voiced your concern about how these changes…