by Whitney
Posted on June 18, 2019
June 18, 2019 Update on Immune Globulin Supply in Canada Dear IG patient/caregiver, As we informed you in a letter dated May 14th, Canadian Blood Services is currently experiencing a shortage of the SCIg product Cuvitru. As previously stated, this shortage will affect predominantly patients with immunodeficiency, and patients with neuromuscular disease. This shortage should…
by Whitney
Posted on May 15, 2019
ATTENTION ALL PATIENTS ON IG THERAPY: Canadian Subcutaneous Immunoglobulin (SCIg) prescribers were notified on Saturday 04-May-2019, at a meeting in Toronto, attended by representatives from Takeda Canada, & Canadian Blood Services (CBS), of an imminent shortage of the Cuvitru brand of SCIg in Canada. This shortage will affect predominantly patients with Immunodeficiency, and patients with…
by Anna
Posted on April 9, 2019
On April 3rd, 2019 the Senate Committee on Social Affairs voted unanimously to recommend that the Senate not move forward with Bill S-252, the Voluntary Blood Act (a bill to amend the blood regulations). This is very good news for the PI community and all of those who require plasma protein products, as this bill…
by Anna
Posted on April 9, 2019
*Important information for patients and caregivers As many of you will know, there have been reported cases of measles in the news. As of today, there have been 32 confirmed cases this year. The confirmed measles cases are in the following areas: Quebec (1 confirmed case in Montreal) Ontario (5 cases, 2 in Ottawa, 2…
by Anna
Posted on March 21, 2019
CIPO will be hosting Peer Support Coach training in Vancouver BC, on Saturday September 28, 2019. We are looking for individuals living in BC and Alberta who wish to take part in this one day session. A CIPO Peer Support Coach provides one-to-one support and encouragement on an as-needed basis to individuals diagnosed with Primary…
by Anna
Posted on March 13, 2019
Unfortunately our Ottawa Support Group that meets at the McNabb Community Center will not be taking place next week, Wednesday March 20th. We look forward to welcoming you all to our next scheduled meeting on Wednesday April 17th
by Anna
Posted on March 9, 2019
On February 20th, CIPO Executive Director, Whitney Goulstone, testified at the Senate Committee on Social Affairs against Bill S-252. Watch the full proceedings here
by Anna
Posted on February 12, 2019
Please take the time to fill out the CORD experience survey for caregivers. Please see below for all the details and the link to the survey. At the Canadian Organization for Rare Disorders (CORD), we are aware that rare disease affects the whole family and extended family and friends. Caring for someone with a…
by Anna
Posted on January 22, 2019
CIPO is pleased to announce that we will be holding five Patient Education events across the country in 2019. Please see below for details: Edmonton, AB – TBC Burnaby, BC – June 1st Moncton, NB – June 15th Toronto, ON – Spetember 28th Winnipeg, MB – October 26th Once the event details have been finalized…
by Anna
Posted on January 21, 2019
Please click on the link below for all the details from our latest newsletter CIPO Winter Newsletter 2019