Category: Uncategorized

Giving Tuesday Nov 27th 2018

by Anna

  On #GivingTuesday CIPO staff will be #GivingBack by volunteering at the Canadian Blood Services donation centres in Vancouver and Victoria, BC.   This is a way we can say thank YOU to the thousands of Canadians who donate blood and plasma every day. These donations save the lives of patients who depend on blood…



BC Chapter Patient Education Day – Slides Available

by Anna

Thank  you to everyone who attended our BC Chapter Patient Education Day in Kelowna.  As promised here are the slides from our speakers, Nicole Fetterly, Rick Trifunov and Dr. Terry Harville.   Nicole Fetterly – Know Your Ingredients Rick Trifunov – CBS Transition Update Dr Terry. Harville – Complementary and Alternative Medicine



Webinar Slides Available

by Anna

Thank  you to everyone who attended our most recent webinar.  As promised here are the slides from our speaker, Peter Saunders, the Associate Director of Canadian Blood Services. PPP Update – CIPO Event    



Board Nominations – application to join the CIPO Board of Directors for 2018-2020 term

by Anna

The Canadian Immunodeficiencies Patient Organization wishes to invite interested candidates to submit their application to join the CIPO Board of Directorsfor 2018-2020 term.   We are particularly interested in hearing from individuals whose experience and skill set includes one or a combination of the following: Finance, accounting, bookeeping Grant writing Legal Public relations, communications Nonprofit, governance,…



CIPO’s Position Statement on Private Insurance and Blood Products

by Anna

Canadian Immunodeficiencies Patient Organization position statement on private insurance and blood products In April, CSL Behring listed the subcutaneous immune globulin product, Hizentra, with private payers for reimbursement. As of today, it has been approved on some open plan formularies. At this time, CIPO is unable to support the listing of plasma protein products with…



IPOPI Position Statement

by Anna

Details of the IPOPI position statement regarding access to immunoglobulin therapies for patients living with a primary immunodeficiency can be found here: IPOPI-2018-Position-Statement



Survey On Switching Immunoglobulin Products (IG)

by Anna

IPOPI are seeking the input of patients living with primary immunodeficiency and parents who are taking care of a child with a primary immunodeficiency (under the age of 18 years), using IG replacement therapy who have switched to another brand or mode of administration (intravenous, subcutaneous, facilitated subcutaneous) during the last 2 years. The survey…



SAFE Project Survey (funded by Canadian Blood Services) – Chance to be entered into the draw for an iPad Mini!

by Anna

Safety, Acceptance, Fairness, and Equality (SAFE Project): Acceptable Risk and Donor Selection This study, conducted by researchers at McGill University and the University of Nottingham (funded by the Canadian Blood Services), seeks to better understand people’s attitudes related to blood donation and the current limits on accepting blood from men-who-have-sex-with-men (MSM). In recent years, the…