by Lauren
Posted on October 19, 2018
Thank you to everyone who attended our BC Chapter Patient Education Day in Kelowna. As promised here are the slides from our speakers, Nicole Fetterly, Rick Trifunov and Dr. Terry Harville. Nicole Fetterly – Know Your Ingredients Rick Trifunov – CBS Transition Update Dr Terry. Harville – Complementary and Alternative Medicine
by Lauren
Posted on August 28, 2018
Thank you to everyone who attended our most recent webinar. As promised here are the slides from our speaker, Peter Saunders, the Associate Director of Canadian Blood Services. PPP Update – CIPO Event
by Lauren
Posted on July 16, 2018
The Canadian Immunodeficiencies Patient Organization wishes to invite interested candidates to submit their application to join the CIPO Board of Directorsfor 2018-2020 term. We are particularly interested in hearing from individuals whose experience and skill set includes one or a combination of the following: Finance, accounting, bookeeping Grant writing Legal Public relations, communications Nonprofit, governance,…
by Lauren
Posted on June 20, 2018
Canadian Immunodeficiencies Patient Organization position statement on private insurance and blood products In April, CSL Behring listed the subcutaneous immune globulin product, Hizentra, with private payers for reimbursement. As of today, it has been approved on some open plan formularies. At this time, CIPO is unable to support the listing of plasma protein products with…
by Lauren
Posted on May 24, 2018
Statement on release of Release of…
by Lauren
Posted on May 24, 2018
Click on the link below for the full report: Protecting IG for Canadians
by Lauren
Posted on May 17, 2018
Details of the IPOPI position statement regarding access to immunoglobulin therapies for patients living with a primary immunodeficiency can be found here: IPOPI-2018-Position-Statement
by Lauren
Posted on May 8, 2018
IPOPI are seeking the input of patients living with primary immunodeficiency and parents who are taking care of a child with a primary immunodeficiency (under the age of 18 years), using IG replacement therapy who have switched to another brand or mode of administration (intravenous, subcutaneous, facilitated subcutaneous) during the last 2 years. The survey…
by Lauren
Posted on April 17, 2018
Safety, Acceptance, Fairness, and Equality (SAFE Project): Acceptable Risk and Donor Selection This study, conducted by researchers at McGill University and the University of Nottingham (funded by the Canadian Blood Services), seeks to better understand people’s attitudes related to blood donation and the current limits on accepting blood from men-who-have-sex-with-men (MSM). In recent years, the…
by Lauren
Posted on April 13, 2018
April 10th, 2018 Update on Immune Globulin Products in Canada Dear CIPO member, Since late 2017 we have been updating our membership in regards to changes to certain immune globulin products. We know that some of you have voiced your concern about how these changes will affect you and your care. Over the last six…