Category: Uncategorized

IPOPI Position Statement

by Lauren

Details of the IPOPI position statement regarding access to immunoglobulin therapies for patients living with a primary immunodeficiency can be found here: IPOPI-2018-Position-Statement



Survey On Switching Immunoglobulin Products (IG)

by Lauren

IPOPI are seeking the input of patients living with primary immunodeficiency and parents who are taking care of a child with a primary immunodeficiency (under the age of 18 years), using IG replacement therapy who have switched to another brand or mode of administration (intravenous, subcutaneous, facilitated subcutaneous) during the last 2 years. The survey…



SAFE Project Survey (funded by Canadian Blood Services) – Chance to be entered into the draw for an iPad Mini!

by Lauren

Safety, Acceptance, Fairness, and Equality (SAFE Project): Acceptable Risk and Donor Selection This study, conducted by researchers at McGill University and the University of Nottingham (funded by the Canadian Blood Services), seeks to better understand people’s attitudes related to blood donation and the current limits on accepting blood from men-who-have-sex-with-men (MSM). In recent years, the…



IG TRANSITION UPDATE – APRIL

by Lauren

April 10th, 2018 Update on Immune Globulin Products in Canada Dear CIPO member, Since late 2017 we have been updating our membership in regards to changes to certain immune globulin products. We know that some of you have voiced your concern about how these changes will affect you and your care. Over the last six…



IG Transition Update – March

by Whitney

March 8th, 2018   Update on Immune Globulin Products in Canada   Dear CIPO member, Over the last few months, we have sent three letters updating you about changes that are taking place across Canada in regards to certain immune globulin products. We know that some of you have voiced your concern about how these…



IG Transition Update – February

by Whitney

February 1st, 2018   Update on Immune Globulin Products in Canada   Dear CIPO member, On November 2nd and December 19th, we sent letters updating you about changes that are taking place across Canada in regards to certain immune globulin products. We know that some of you have voiced your concern about how these changes…



IG Transition Information Events – Get your questions answered!

by Whitney

CIPO is facilitating a series of patient information evening across Canada in order for every patient to understand and be comfortable with the upcoming changes to their IG treatment. In November, Canadian Blood Services announced changes to both IVIG and SCIG that would be taking place starting this Spring. In order for all primary immunodeficiency…



Statement on Winnipeg Nursing Cuts

by Whitney

January 14th , 2018 CIPO Statement re: Winnipeg IV Nursing Cuts The Winnipeg Regional Health Authority (WRHA) has recently eliminated Winnipeg Hospital’s vascular access team, which included roughly 15 nurses that specialized in IV insertion. CIPO empathizes with our members and we do realize the importance of this role to immunodeficiency patients currently on IVIG,…



CIPO Winter Newsletter

by Whitney

CIPO’s winter newsletter is now available, filled with information regarding the primary immunodeficiency community across Canada. Read it all here and don’t miss out! If you have not signed up to receive our news sign up now! There is no cost to become a CIPO member and you will receive all of our news, access…



IG Transition Update

by Whitney

December 19th, 2017   Update on Immune Globulin Products in Canada   Dear CIPO member, On November 2nd, we sent a letter to you containing information about changes that will be taking place across Canada in regards to certain immune globulin products. We know that some of you have voiced your concern about how these…