Category: Uncategorized

Fall Webinar Series Announced

by Whitney

Join us for our new information series. Each session of four webinars will highlight a different aspect of care in immunodeficiency. $10 each or $30 for 4 Fall – Health  Winter – Wellness Spring – Education   CIPO’s fall webinar sessions will focus on Health. Featuring new speakers and new topics.    September 25th 5pm…



Wednesday Night Meetups are Back

by Whitney

Our mods have had a break for the summer and are ready to get social again! Join us every other Wednesday for chance to meet new people from the immunodeficiency community, chat and hang out from the comfort of your own COVID-free home.  Every other Wednesday 7pm-8:30pm EST (5pm-6pm PST), starting September 15th.  No registration required. 



Save the Date – CIPO National Conference 2022!!!!

by Whitney

To celebrate our 25th anniversary CIPO will be holding a National Conference and Gala. Three days of expert speakers, panels, excursions, exhibitions and all things PI! We could not be more excited. Please mark your calendars for September 9-11, 2022 and join us in Ottawa.  A virtual option will be available. More details and registration…



New Proposed Bylaws

by Whitney

The CIPO Board of Directors along with CIPO Governance Committee is proposing new bylaws for the organization. These proposed bylaws will be voted on the Annual General Meeting being held virtually on October 23rd at 4pm EST.  All CIPO members in good standing are eligible to attend the AGM and receive one vote.  Review the…



CIPO Submission to CADTH

by Whitney

Thank you to all our members who participated in our recent survey on treatment. CIPO used the data collected to create a patient submission to the CADTH (Canadian Agency on Drugs and Technology in Heath) for a new product that is currently being reviewed. You can read CIPO’s submission on the product, Hyqvia, here Now…



COVID Antibody Study in Immune Deficiency Patients

by Whitney

CIPO is proud to partner with the Ottawa Hospital and lead investigator Dr. Juthaporn Cowan as they launch the VISID (Vaccine Immunogenicity and Safety in ImmunoDeficiency patients) study. This study which will look at effectiveness, safety and immune response in immune compromised patients who have, or plan to receive, a COVID-19 vaccine has launched today…



International Neonatal Screening Day

by Whitney

CIPO is thrilled to announce the launch of the first International Neonatal Screening Day (INSD) on June 28th. IPOPI (the International Patient Organization for Primary Immunodeficiency) has been working in partnership with the International Society for Neonatal Screening (ISNS) and the European Society for Immunodeficiencies (ESID), under the Screen4Rare initiative to bring about this special day. To…



IMPORTANT: Immunodeficiency Patient Research Survey

by Whitney

June 8, 2021   A new treatment for immunodeficiency patients is being submitted to the Canadian Agency for Drugs and Technologies in Health (CADTH).   Patient organizations are allowed to submit input about patient experiences, but we need your help.   Please take 10-15 minutes to complete this survey about your experience with your treatment. Your answers…



New Cuvitru and Gammaguard Websites

by Whitney

Takeda Canada, the manufacturers of Cuvitru and Gammaguard, have created new product specific websites for patients using these products with resources and videos.  www.cuvitru.ca www.gammagard.ca  They have also created a non-product specific site for people living with immunodeficiency: “Living With ID” www.livingwithid.ca Be sure to check out the sites!



Hizentra Announcement

by Whitney

Canadian Blood Services and Hema-Quebec have announced that Hizentra 20ml (4g) will be available in pre-filled syringe. The transition of the 20ml format from vials to pre-filled syringes is expected to be completed by the end of June 2021. This transition will mean that Hizentra 20ml (4g), 10ml (2g) and 5ml (1g) will only be…