by Whitney
Posted on November 24, 2020
Thursday, November 26, 2020 Release: CIPO Podcast to Launch December 4th The Canadian Immunodeficiencies Patient Organization (CIPO) is pleased to announce the launch of our first podcast, “Slice of PI” available as of December 4th. Throughout the 10 episode season, listeners will join host, and primary immunodeficiency patient, Bryan Hemmingway as he discusses different aspects…
by Whitney
Posted on October 25, 2020
CIPO AGM Notice CIPO’s annual general meeting will be held on Saturday, November 28th at 7pm EST. This meeting will be held virtually and is open to all CIPO members. Please email info@cipo.ca to receive the meeting details. The AGM meeting agenda can be found here. AGM Agenda CIPO’s 2019 Financial Statements can be found here: Canadian Immunodeficiencies…
by Whitney
Posted on October 13, 2020
October 14th Re: Possible Disruptions IVIG CIPO has been advised by Canadian Blood Services and the National Emergency Blood Management Committee that due to the drop in donations in plasma worldwide and the mounting pressure on demand for immune globulin globally, there is the possibility for supply disruptions in the future. What This Means If…
by Whitney
Posted on October 12, 2020
Last week was International Plasma Awareness Week and IPOPI (the International Patient Organization for Primary Immunodeficiency) has announced “7 Measures for Increasing Plasma Supply” During IPAW 2020 we have been calling for national, regional and international decision makers to consider ways of safely increasing plasma collection, by following 7 specific measures. Sufficient plasma collection is…
by Whitney
Posted on October 12, 2020
On October 5, CIPO wrote to the Alberta Minister of Health, Tyler Shandro, asking for access to gene therapy for two children (under the age of 2) who have been diagnosed with ADA-SCID, a severe form of immunodeficiency. Both children are not candidates for bone marrow transplant, and are currently receiving an enzyme replacement therapy…
by Whitney
Posted on October 7, 2020
CIPO would like to hear from you if you tried to receive home delivery for your plasma product during COVID-19. Please take our short (3 question) survey here. As you may know, CIPO worked with Canadian Blood Services and other patient organizations to set up a home delivery service at the beginning of the pandemic.…
by Whitney
Posted on October 7, 2020
October 5-9 is International Plasma Awareness Week, a week where we raise awareness of this vital resource. Plasma donation is currently down roughly 25% globally during the COVID-19 pandemic and that will have consequences on the already strained global immune globulin supply. During IPAW, we at CIPO would like to raise awareness around the need…
by Whitney
Posted on September 17, 2020
Our summer newsletter is now available. https://conta.cc/2FHs0XY
by Whitney
Posted on August 11, 2020
Telus has expanded it’s “Internet for Good” program to include persons living with disabilities in Alberta and BC who receive financial assistance from the provincial government through the provincial disabilities program. The “Internet for Good” program provides high speed internet for $9.95 a month for individuals who qualify. For more information, https://www.telus.com/en/about/company-overview/community-investment/how-we-give/cause-campaigns/internet-for-good
by Whitney
Posted on July 8, 2020
Subject: Tell Your MLA to Support the Bill to Repeal Dear CIPO Alberta Members, Today, MLA for Wood Buffalo, Tany Yao, introduced a private members bill to repeal the Voluntary Blood Donations Act. The Voluntary Blood Donations Act: Passed in 2017 under the NDP Government, the Voluntary Blood Donations Act banned all compensation for…