Living with Primary Immunodeficiency disease can be challenging at times. We’ve put together a list of resources for patients living in Canada that may help alleviate some of the burden; be it financial, emotional, or social. Resources may vary across Canada.
There are a few options for Canadian PI patients and their families looking for financial assistance. Most of these funds are on an application basis and financial need must be demonstrated.
CIPO’s own resource to assist patients who need a little help. Patients or families may apply to the fund using our application form. Requests to the fund will be reviewed on a case by case basis. Full details about the Helping Hand Fund can be found here
Hope Air provides travel for patients and families who need to visit doctors outside of their communities in a non-emergency situation at no charge.
The Disability Tax Credit and the Registered Disability Savings Plan (RDSP) is a non-refundable tax credit in Canada for individuals who have a severe and prolonged impairment in physical or mental function.
BC & AB: Telus offers internet through it’s “Internet for Good” program for people with disabilities for $9.95/month. Lear more https://www.telus.com/en/about/company-overview/community-investment/how-we-give/cause-campaigns/internet-for-good
CIPO is proud to partner with the National Emergency Nurses Association (NENA) to improve the experience of immunodeficient patients in emergent and urgent care settings. This initiative will include the production of patient wallet cards, the production of national emergency room guidelines and emergency room nurse training. A special thank you to our friends at Grifols for funding this important initiative.
Update March 2020: Wallet cards are now available! To receive one, simply email your mailing address to email@example.com
Moving? Whether you are moving from one side of Canada to the other or staying within Province, we can help you find the specialists you need and navigate the healthcare system to ensure that you don’t miss any treatments. [Contact us] for details.
Clinical trials are research studies where patients volunteer to address specific health issues. These studies may be designed to learn more about a specific disorder, identify the causative gene, discover new therapies or improve existing treatments. By participating in clinical trials, patients can be more involved in their own healthcare and potentially gain access to the newest treatments before they become widely available. Participation in clinical trials is also an important way to help others affected with a similar disease.
Choosing to whether to take part in a clinical trial is an important personal decision and should be made in discussion with your specialist care provider.
The Immune Deficiency Foundation is a US patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.