You are not alone. At CIPO, we have options to find the support that you need. Take a look and if you don’t see what you want, let us know.
CIPO offers local support groups in our provincial chapters. We run these groups based on demand and need in an area. Currently, we are running groups in Vancouver, Vernon, Ottawa, Toronto and Winnipeg with groups planned in Edmonton and Halifax. You can find the detail for our current groups here. If you’re interested in joining a group or would like to see a group in your area, please contact us
The Peer Support Program which is modelled on the IDF program of the same name gives those affected by primary immunodeficiency the opportunity to connect with a trained volunteer who shares a similar personal experience to PI. This one-on-one support is perfect for those newly diagnosed or those in need of a little extra support. Training sessions for those interested in peer support coaching will be taking place in the Spring with the location TBC. If you’re a PI patient or a family member of a patient and would like to take part in this exciting and integral new service, please contact us.
CIPO has appointed Erin Harder our National Support Lead to oversee the management of the support groups and the Peer Support Program. If you would like to contact Erin, email email@example.com
Our Patient Education Events have always been a place where those whose lives are affected by PI can come and learn and share in an open and non-judgemental environment. It is also a place where you can meet others who share similar experiences and make new friends, or reconnect with old ones. For those not looking for a formal support setting, these events are a great alternative. Details of our upcoming Patient Education events will be announced in the News section of our website.
Chronic illness can mean that sometimes it’s not easy getting out. That’s OK! The PI Community is there for you. Join the CIPO Facebook group and connect with others whose lives are affected by PI. It’s a closed group to patients and family members only.