Education

Learn about primary immunodeficiency through one of CIPO’s education tools. Attend a Patient Education Event near you, read our Educational Materials, or sign up for our newsletter. Don’t know where to start? Try the Glossary of PI Terms, a great resource for everyone.

Find an event

Support

Sick and tired of being sick and tired? You’re not alone. CIPO offers a variety of support programs. Our Patient Support Groups allow you to connect and share in a friendly and safe atmosphere. Newly diagnosed or looking for more personal support? CIPO’s new Peer Support Program offers the ability to connect with someone on a one-to-one basis.

Learn More

Advocacy

We are here to advocate for you! CIPO goes to all levels of government in order to have the needs of PI patients met. Currently, our advocacy work includes: SCID newborn screening, pay-for-plasma, comprehensive care, access to treatment and supplies, and earlier diagnosis through raising awareness.

Learn More

What is PI?

The world of Primary Immunodeficiency can be daunting, check out our guides to help find your way.

The Immune System
more infoview larger
The Immune System
Specific Disease Types
more infoview larger
Specific Disease Types
SCID Newborn Screening
more infoview larger
SCID Newborn Screening
Glossary of Terms
more infoview larger
Glossary of Terms

Living with PI

We’ve put together some resources to assist those living with PI in Canada.

MEET OUR TEAM

The CIPO team is a group of individuals from across Canada dedicated to addressing the needs of PID patients.

Whitney Goulstone

Whitney Goulstone

Executive Director

Whitney joined CIPO in 2014, identifying a need for support in Ontario. A PI patient herself, Whitney lends a strong personal voice to this role. With over a decade working in advocacy, she brings passion and drive every day.

Erin Harder

Erin Harder

President

A mother of two children with Chronic Mucocutaneous Candidiasis (CMC), Erin has been involved with CIPO since 2012 when she joined the CIPO Manitoba chapter. She has been a tireless advocate for parents and children living with PI, and hopes to implement a school guide in Canada.

Christine Duncan

Christine Duncan

Vice-President and Director, Ontario

Christine is a nurse educator and a CVID patient who brings a wealth of knowledge to the board and to the Ontario Chapter. Her journey with CVID has brought her all over Ontario – Thunder Bay, Sarnia, Toronto and now London.

Martine Allard

Martine Allard

Secretary

Not only is Martine a CVID patient, and Secretary for CIPO, but she is also Vice-President for APIQ (our French sister organization). We don’t know how she does it! Martine lives in Quebec City and enjoys running and Doctor Who.

Wendy Chandler

Wendy Chandler

Director, British Columbia

A retired counsellor and CVID patient, Wendy runs support groups in Vancouver and is also CIPO’s Support Lead. Married, with two children and one grandchild, she is as busy since she retired years ago as she was when working.

Amanda Lefebvre

Amanda Lefebvre

Director, Alberta

Diganosed with PI at a young age, Amanda has lived the majority of her life on treatment. With a husband in the military, she has had the opportunity to travel and see the patient perspective in several provinces. Amanda is the proud mom of two.

Sylvie Matthews

Sylvie Matthews

Director, Manitoba

A mom to a teenager with PI, Sylvie works hard to make sure that he receives access to the best possible care and treatment available. She became involved in CIPO Manitoba to ensure that other parents would not have to fight as hard as she does.

NEWS & EVENTS

CIPO organizes patient events in locations across Canada. This is where you can find out what’s going on, and sign up.

Hi Toni!
Toni Quinn
Hi Tonya!
Tonya Leblond
Hi Mavis!
Mavis Jackson

people celebrating

20th Anniversary Campaign: 20 Years, 20 Families

This year, CIPO’s goal is to be able to meet all requests made to us from those needing financial assistance, with this in mind we designed our “20th Anniversary Campaign: 20 Years, 20 Families”. Donate Now to help us reach our goal and help one of the many affected by primary Immunodeficiency diseases in Canada.

Advocacy Spotlight

Rare Disease Day is an important occasion to CIPO, our members, the Primary Immune Disease community and, of course the entire Rare Disease community. This is a day to raise our voices as one across the globe and bring focus and strength to the causes that we are trying to promote within rare diseases in our specific regions.

For some helpful toolkits and all you need to “Rare” up your social media, visit www.rarediseaseday.org
Next month: Comprehensive Care

GET INVOLVED

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Volunteer with us

Our volunteers are who were are. Volunteer today and join a 20 year strong community. There are many ways your skills can be used, everyone is welcome.

CommitteeEventsPeer SupportSocial MediaOther

Apply Now

Find an event

CIPO has events across our chapters annually, be sure to see if we are coming to your town. If not, why not host your own event with our help!

Donate

Our vital services support the thousands of Canadians affected by PI. Learn how to help sustain these services and one of the many ways to donate.

Join CIPO today!

Become a member and become part of the only patient group for PI in Canada. Membership is free, receive newsletters, support and so much more.

Your Name*

Your Email*

Subject

Your Message

Contact Us