Education

Learn about primary immunodeficiency through one of CIPO’s education tools. Attend a Patient Education Event near you, read our Educational Materials, or sign up for our newsletter. Don’t know where to start? Try the Glossary of PI Terms, a great resource for everyone.

Find an event

Support

Sick and tired of being sick and tired? You’re not alone. CIPO offers a variety of support programs. Our Patient Support Groups allow you to connect and share in a friendly and safe atmosphere. Newly diagnosed or looking for more personal support? CIPO’s new Peer Support Program offers the ability to connect with someone on a one-to-one basis.

Learn More

Advocacy

We are here to advocate for you! CIPO goes to all levels of government in order to have the needs of PI patients met. Currently, our advocacy work includes: SCID newborn screening, pay-for-plasma, comprehensive care, access to treatment and supplies, and earlier diagnosis through raising awareness.

Learn More

What is PI?

The world of Primary Immunodeficiency can be daunting, check out our guides to help find your way.

The Immune System
more infoview larger
The Immune System
Specific Disease Types
more infoview larger
Specific Disease Types
SCID Newborn Screening
more infoview larger
SCID Newborn Screening
Glossary of Terms
more infoview larger
Glossary of Terms

Living with PI

We’ve put together some resources to assist those living with PI in Canada.

MEET OUR TEAM

The CIPO team is a group of individuals from across Canada dedicated to addressing the needs of PID patients.

Whitney Goulstone

Whitney Goulstone

Executive Director

 Whitney joined CIPO in 2014, identifying a need for support in Ontario. A PI patient herself, Whitney lends a strong personal voice to this role. With over a decade working in advocacy, she brings passion and drive every day.

Wendy Chandler

Wendy Chandler

Chair

A retired counsellor and CVID patient, Wendy runs support groups in Vancouver and is also CIPO’s Support Lead. Married, with two children and one grandchild, she is as busy since she retired years ago as she was when working.

Elizabeth Doherty

Elizabeth Doherty

Director, Atlantic Canada

Elizabeth lives in Fredicton, NB and comes from an advocacy background and is affiliated with the NB Lung Association and the Canadian Lung Association. Prior to her PI diagnosis in 2014, Liz would spend over half of the year in the hospital.

Erin Harder

Erin Harder

Programs Director

A mother of 2 with Chronic Mucocutaneous Candidiasis (CMC), Erin has been  with CIPO since 2012. She has been an advocate for parents and children with PI, and hopes to implement a school guide in Canada.

Christine Duncan

Christine Duncan

Vice Chair

Christine is a nurse educator and a CVID patient who brings a wealth of knowledge to the board and to the Ontario Chapter. Her journey with CVID has brought her all over Ontario – Thunder Bay, Sarnia, Toronto and now London.

Judith Mailly-MacDougall

Judith Mailly-MacDougall

Director, Quebec

An APIQ board member for the past 3 years, and mother of 4 children, 2 with a PI, Judith teaches business administration, and is studying to be a Child Life Specialist to assist families with hospitalizations, disabilities and disease.

    Anna Riley

    Anna Riley

    Adminstrative Assistant

    Anna who is from Bristol, England, has a background working in Universities, but is now very much looking forward to supporting the CIPO team with all their hard work and to getting to know you all.

    Martine Allard

    Martine Allard

    Secretary

    Not only is Martine a CVID patient, and Secretary for CIPO, but she is also Vice-President for APIQ (our French sister organization). We don’t know how she does it! Martine lives in Quebec City and enjoys running and Doctor Who.

    Amanda Lefebvre

    Amanda Lefebvre

    Director, Alberta

    Diganosed with PI at a young age, Amanda has lived the majority of her life on treatment. With a husband in the military, she has had the opportunity to travel and see the patient perspective in several provinces. Amanda is the proud mom of two.

    NEWS & EVENTS

    CIPO organizes patient events in locations across Canada. This is where you can find out what’s going on, and sign up.

    Hi Delia!
    Delia Cooper
    Hi Mary!
    Mary Hill
    Thank you!
    Anonymous

    people celebrating

    20th Anniversary Campaign: 20 Years, 20 Families

    This year, CIPO’s goal is to be able to meet all requests made to us from those needing financial assistance, with this in mind we designed our “20th Anniversary Campaign: 20 Years, 20 Families”. Donate Now to help us reach our goal and help one of the many affected by primary Immunodeficiency diseases in Canada.

    GET INVOLVED

    Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

    Volunteer with us

    Our volunteers are who were are. Volunteer today and join a 20 year strong community. There are many ways your skills can be used, everyone is welcome.

    CommitteeEventsPeer SupportSocial MediaOther

    Apply Now

    Find an event

    CIPO has events across our chapters annually, be sure to see if we are coming to your town. If not, why not host your own event with our help!

    Donate

    Our vital services support the thousands of Canadians affected by PI. Learn how to help sustain these services and one of the many ways to donate.

    Join CIPO today!

    Become a member and become part of the only patient group for PI in Canada. Membership is free, receive newsletters, support and so much more.


    Contact Us