Learn about primary immunodeficiency through one of CIPO’s education tools. Attend a Patient Education Event near you, read our Educational Materials, or sign up for our newsletter. Don’t know where to start? Try the Glossary of PI Terms, a great resource for everyone.
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Sick and tired of being sick and tired? You’re not alone. CIPO offers a variety of support programs. Our Patient Support Groups allow you to connect and share in a friendly and safe atmosphere. Newly diagnosed or looking for more personal support? CIPO’s new Peer Support Program offers the ability to connect with someone on a one-to-one basis.
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We are here to advocate for you! CIPO goes to all levels of government in order to have the needs of PI patients met. Currently, our advocacy work includes: SCID newborn screening, pay-for-plasma, comprehensive care, access to treatment and supplies, and earlier diagnosis through raising awareness.
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Whitney joined CIPO in 2014, identifying a need for support in Ontario. A PI patient herself, Whitney lends a strong personal voice to this role. With over a decade working in advocacy, she brings passion and drive every day.
A mother of two children with Chronic Mucocutaneous Candidiasis (CMC), Erin has been involved with CIPO since 2012 when she joined the CIPO Manitoba chapter. She has been a tireless advocate for parents and children living with PI, and hopes to implement a school guide in Canada.
Christine is a nurse educator and a CVID patient who brings a wealth of knowledge to the board and to the Ontario Chapter. Her journey with CVID has brought her all over Ontario – Thunder Bay, Sarnia, Toronto and now London.
Not only is Martine a CVID patient, and Secretary for CIPO, but she is also Vice-President for APIQ (our French sister organization). We don’t know how she does it! Martine lives in Quebec City and enjoys running and Doctor Who.
A retired counsellor and CVID patient, Wendy runs support groups in Vancouver and is also CIPO’s Support Lead. Married, with two children and one grandchild, she is as busy since she retired years ago as she was when working.
Diganosed with PI at a young age, Amanda has lived the majority of her life on treatment. With a husband in the military, she has had the opportunity to travel and see the patient perspective in several provinces. Amanda is the proud mom of two.
Elizabeth lives in Fredicton, NB and comes from an advocacy background and is affiliated with the NB Lung Association and the Canadian Lung Association. Prior to her PI diagnosis in 2014, Liz would spend over half of the year in the hospital and her young son would refer to the hospital as “Mommy’s house”.
This year, CIPO’s goal is to be able to meet all requests made to us from those needing financial assistance, with this in mind we designed our “20th Anniversary Campaign: 20 Years, 20 Families”. Donate Now to help us reach our goal and help one of the many affected by primary Immunodeficiency diseases in Canada.
Our volunteers are who were are. Volunteer today and join a 20 year strong community. There are many ways your skills can be used, everyone is welcome.
Become a member and become part of the only patient group for PI in Canada. Membership is free, receive newsletters, support and so much more.
