Canadian Immunodeficiencies Patient Organization (CIPO) became a registered charity in 1999. It has been growing ever since, working hard to assist patients in understanding their immune disorders and treatment options through education and other resources. We are a volunteer-based, Registered Charity and we graciously thank our volunteers and our supporters for their contributions to our efforts.
Help Raise PI Awareness
Not only is April PI Awareness Month, but April 22-29 is World PI Awareness Week. This year, the focus is to raise awareness of PI. This year’s campaign: “TEST! DIAGNOSE! TREAT! – Turning hope into action” highlights the priorities of the PID community.
For those wanting to get involved, there are many ways as easy as signing a petition to holding your own event for the more ambitious. There are plenty of resources available at http://www.worldpiweek.org/get-involved. As for us here at CIPO, we will be holding an information station at the Faculty of Medicine, McMaster University on April 23rd. If you are nearby please stop by and check out what is on offer! #worldpiweek WPIW POSTER 2015
Australian SCID patient gets new immune system
Check out this amazing story about Kini Tawalo, a boy from the Northern Territories born with Hunter’s Syndrome and needing the important bone marrow transplant. With no match to be found, doctors did some incredible work to save him read about it here: http://www.smh.com.au/technology/sci-tech/sydney-doctors-pioneer-procedure-that-gives-baby-boy-new-immune-system-20150228-13e1qb.html
Patient Notification System
Register either online or by phone for this confidential free service, which notifies the patient (or other registrants, e.g. caregiver) directly of any voluntary or mandated withdrawals or recalls of plasma protein therapies.
You can be notified by phone, email or fax. Visit www.patientnotificationsystem.org or call 1-888-UPDATE-U (873-2838) to register.
New Spring events announced!
We have taken to the road and added a number of events this Spring. Check out the events page to see if there is CIPO is coming to your town.
Please check out our new CIPO Poster
CIPO is an organization where you can meet and talk to other patients with primary or secondary immune disorders, both on-line and in person.
CIPO has six regional Chapters in Canada that hold regular meetings and offer services to patients such as providing literature, advocacy, organizing educational events, and referrals. To continue to offer these services to patients and medical professionals, CIPO relies on the generosity of several organizations for unrestricted funding. Our sponsors are dedicated organizations that support CIPO and we greatly appreciate these sponsors and their commitment to our goals.
CIPO is pleased to thank our pharmaceutical supporters for their time, effort and support for the educational events that our PID patients and their families attend and for furthering the education of our medical community in Primary Immune Deficiency.
We would like to thank the IDF, the Jeffrey Modell Foundation, ESID and IPOPI for allowing us to use/link to their websites in order for our patients to research their immune disorders. We appreciate all the hard work and dedication that has gone into their websites and publications and are grateful to be granted permission to use them.
We would also like to thank
U*Store*It Self-Storage, Edmonton South for their generous support.