Canadian Immunodeficiencies Patient Organization (CIPO) became a registered charity in 1999. It has been growing ever since, working hard to assist patients in understanding their immune disorders and treatment options through education and other resources. We are a volunteer-based, Registered Charity and we graciously thank our volunteers and our supporters for their contributions to our efforts.
Become a part of the CIPO Community now (there is no cost to join) and you will enjoy all the benefits of membership:
- Quarterly email newsletters delivered to your inbox
- Attend educational events at no cost
- Join a local support group
- Publications and resources on Primary Immunodeficiency
- Stay up-to-date on the latest in the PI community
- Connect with other patients, family members and caregivers
- Have your questions answered, in a safe, confidential environment.
CIPO Autumn Newsletter Out NOW!
The CIPO Newsletter is available now online in digital format. Read all the news that has been happening by clicking the following link: http://conta.cc/1HysGJc
NEW! Take the CIPO Patient Survey Now
CIPO is proud to present the 2015 PI Patient Survey. Now is your time to have a say in your treatment and your services. Please take a few moments to fill out this vital survey and make an impact in your health care. The results from this survey will help shape the future for PI care in Canada. As an added incentive, every survey will be entered into our prize draw. Let’s make a difference together!
It’s Flu Season!
Unfortunately, it’s that time of year again. Flu season is inevitable, but getting the flu isn’t. Protect yourself against the flu. CIPO has some helpful resources for you here.
CIPO Summer Newsletter Out Now!
The CIPO Newsletter is available now online in digital format. Read all the news that has been happening by clicking the following link: CIPO Summer Newsletter (1)
CSL Launches Updates to Hizentra App
A Push training video is now available of the Hizentra app. It is a great video for patients to learn or refresh their skills on how to administer push Hizentra. The app can be accessed and downloaded from a landing page. You will only be prompted to download the French version if your phone is set to French, otherwise your default download will be the English one. The app also contains helpful information, tools and resources for the patient, which can be accessed at all times. The app can be downloaded here.
Help Raise PI Awareness
Not only is April PI Awareness Month, but April 22-29 is World PI Awareness Week. This year, the focus is to raise awareness of PI. This year’s campaign: “TEST! DIAGNOSE! TREAT! – Turning hope into action” highlights the priorities of the PID community.
For those wanting to get involved, there are many ways as easy as signing a petition to holding your own event for the more ambitious. There are plenty of resources available at http://www.worldpiweek.org/get-involved. As for us here at CIPO, we will be holding an information station at the Faculty of Medicine, McMaster University on April 23rd. If you are nearby please stop by and check out what is on offer! #worldpiweek WPIW POSTER 2015
Australian SCID patient gets new immune system
Check out this amazing story about Kini Tawalo, a boy from the Northern Territories born with Hunter’s Syndrome and needing the important bone marrow transplant. With no match to be found, doctors did some incredible work to save him read about it here: http://www.smh.com.au/technology/sci-tech/sydney-doctors-pioneer-procedure-that-gives-baby-boy-new-immune-system-20150228-13e1qb.html
Patient Notification System
Register either online or by phone for this confidential free service, which notifies the patient (or other registrants, e.g. caregiver) directly of any voluntary or mandated withdrawals or recalls of plasma protein therapies.
You can be notified by phone, email or fax. Visit www.patientnotificationsystem.org or call 1-888-UPDATE-U (873-2838) to register.
New Spring events announced!
We have taken to the road and added a number of events this Spring. Check out the events page to see if there is CIPO is coming to your town.
Please check out our new CIPO Poster
CIPO is an organization where you can meet and talk to other patients with primary or secondary immune disorders, both on-line and in person.
CIPO has six regional Chapters in Canada that hold regular meetings and offer services to patients such as providing literature, advocacy, organizing educational events, and referrals. To continue to offer these services to patients and medical professionals, CIPO relies on the generosity of several organizations for unrestricted funding. Our sponsors are dedicated organizations that support CIPO and we greatly appreciate these sponsors and their commitment to our goals.
CIPO is pleased to thank our pharmaceutical supporters for their time, effort and support for the educational events that our PID patients and their families attend and for furthering the education of our medical community in Primary Immune Deficiency.
We would like to thank the IDF, the Jeffrey Modell Foundation, ESID and IPOPI for allowing us to use/link to their websites in order for our patients to research their immune disorders. We appreciate all the hard work and dedication that has gone into their websites and publications and are grateful to be granted permission to use them.