Canadian Immunodeficiencies Patient Organization (CIPO) became a registered charity in 1999. It has been growing ever since, working hard to assist patients in understanding their immune disorders and treatment options through education and other resources. We are a volunteer-based, Registered Charity and we graciously thank our volunteers and our supporters for their contributions to our efforts.
Register NOW for the Calgary Education Day
The Network for Rare Blood Disorders Organization (NRBDO) Alberta and CIPO and are pleased to present “Getting Your Health in Working Order with Comprehensive Care”. This educational event is designed for patients, family members, caregivers and health care professionals. This is a rare opportunity to meet and interact with physicians and health care providers that work with blood disorders on a day-to-day basis. It is also a time for you to learn more and to network with others who are directly affected. Thanks to our sponsors this event is free and includes lunch and refreshments. Travel subsidies for those outside of Calgary may be available, please check the NRBDO website to register and for updated information. www.nrbdo.ca Registration closes October 9th.
CIPO Summer Newsletter Out Now!
The CIPO Newsletter is available now online in digital format. Read all the news that has been happening by clicking the following link: CIPO Summer Newsletter (1)
CSL Launches Updates to Hizentra App
A Push training video is now available of the Hizentra app. It is a great video for patients to learn or refresh their skills on how to administer push Hizentra. The app can be accessed and downloaded from a landing page. You will only be prompted to download the French version if your phone is set to French, otherwise your default download will be the English one. The app also contains helpful information, tools and resources for the patient, which can be accessed at all times. The app can be downloaded here.
Canadian Reception at IDF Conference
CIPO (Canadian Immunodeficiency Patient Organization) and Immunodeficiency Canada invite you to join us in the Borgne Bar located off the main lobby at the Hyatt Regency, New Orleans, Thursday, June 25th at 8:00 pm. Drop by and meet other Canadians attending the IDF 2015 National Conference and receive a Canadian sticker/pin to wear for the duration of the conference. Come enjoy a taste of New Orleans courtesy of us. We look forward to meeting you. Questions? email@example.com
CIPO Announces AGM
Help Raise PI Awareness
Not only is April PI Awareness Month, but April 22-29 is World PI Awareness Week. This year, the focus is to raise awareness of PI. This year’s campaign: “TEST! DIAGNOSE! TREAT! – Turning hope into action” highlights the priorities of the PID community.
For those wanting to get involved, there are many ways as easy as signing a petition to holding your own event for the more ambitious. There are plenty of resources available at http://www.worldpiweek.org/get-involved. As for us here at CIPO, we will be holding an information station at the Faculty of Medicine, McMaster University on April 23rd. If you are nearby please stop by and check out what is on offer! #worldpiweek WPIW POSTER 2015
Australian SCID patient gets new immune system
Check out this amazing story about Kini Tawalo, a boy from the Northern Territories born with Hunter’s Syndrome and needing the important bone marrow transplant. With no match to be found, doctors did some incredible work to save him read about it here: http://www.smh.com.au/technology/sci-tech/sydney-doctors-pioneer-procedure-that-gives-baby-boy-new-immune-system-20150228-13e1qb.html
Patient Notification System
Register either online or by phone for this confidential free service, which notifies the patient (or other registrants, e.g. caregiver) directly of any voluntary or mandated withdrawals or recalls of plasma protein therapies.
You can be notified by phone, email or fax. Visit www.patientnotificationsystem.org or call 1-888-UPDATE-U (873-2838) to register.
New Spring events announced!
We have taken to the road and added a number of events this Spring. Check out the events page to see if there is CIPO is coming to your town.
Please check out our new CIPO Poster
CIPO is an organization where you can meet and talk to other patients with primary or secondary immune disorders, both on-line and in person.
CIPO has six regional Chapters in Canada that hold regular meetings and offer services to patients such as providing literature, advocacy, organizing educational events, and referrals. To continue to offer these services to patients and medical professionals, CIPO relies on the generosity of several organizations for unrestricted funding. Our sponsors are dedicated organizations that support CIPO and we greatly appreciate these sponsors and their commitment to our goals.
CIPO is pleased to thank our pharmaceutical supporters for their time, effort and support for the educational events that our PID patients and their families attend and for furthering the education of our medical community in Primary Immune Deficiency.
We would like to thank the IDF, the Jeffrey Modell Foundation, ESID and IPOPI for allowing us to use/link to their websites in order for our patients to research their immune disorders. We appreciate all the hard work and dedication that has gone into their websites and publications and are grateful to be granted permission to use them.
We would also like to thank
U*Store*It Self-Storage, Edmonton South for their generous support.