Education

Learn about primary immunodeficiency through one of CIPO’s education tools. Attend a Patient Education Event near you, read our Educational Materials, or sign up for our newsletter. Don’t know where to start? Try the Glossary of PI Terms, a great resource for everyone.

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Support

Sick and tired of being sick and tired? You’re not alone. CIPO offers a variety of support programs. Our Patient Support Groups allow you to connect and share in a friendly and safe atmosphere. Newly diagnosed or looking for more personal support? CIPO’s new Peer Support Program offers the ability to connect with someone on a one-to-one basis.

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Advocacy

We are here to advocate for you! CIPO goes to all levels of government in order to have the needs of PI patients met. Currently, our advocacy work includes: SCID newborn screening, pay-for-plasma, comprehensive care, access to treatment and supplies, and earlier diagnosis through raising awareness.

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What is PI?

The world of Primary Immunodeficiency can be daunting, check out our guides to help find your way.

The Immune System
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The Immune System
Specific Disease Types
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Specific Disease Types
SCID Newborn Screening
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SCID Newborn Screening
Glossary of Terms
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Glossary of Terms

Living with PI

We’ve put together some resources to assist those living with PI in Canada.

MEET OUR TEAM

The CIPO team is a group of individuals from across Canada dedicated to addressing the needs of PID patients.

Whitney Ayoub Goulstone

Whitney Ayoub Goulstone

Executive Director

With CIPO since 2014, Whitney lends a strong personal voice. With over a decade working in advocacy, she cares deeply for the patient community.

Erin Harder

Erin Harder

Volunteer and Family Services Coordinator

Erin has been  with CIPO since 2012. She has been an advocate for parents and children with PI, and hopes to implement a school guide in Canada.

David Josey

David Josey

Programs Manager

David has worked to plan and design programs based on the needs of community members for over a decade. For fun, he enjoys travel and the great outdoors. 

Anita Cymet

Anita Cymet

Fund Development Coordinator

 Anita has been a passionate fundraiser for the non-profit world for over 25 years, aligning herself with organizations that work hard to do important things for both people and animals.

Lauren House

Lauren House

Administrator

 Bringing over 15 years of experience in her field, she embraces the core values of integrity, innovation, and growth. She hopes to share her voice and ideas to create change.

Megan Wong

Megan Wong

Social Media Coordinator

 Megan is a 4th year student at the University of Victoria. She is passionate about activism, the arts and advocacy work. She’s so excited to be working with CIPO and connecting with you all!

 

NEWS & EVENTS

CIPO organizes patient events in locations across Canada. This is where you can find out what’s going on, and sign up.

Hi Delia!
Delia Cooper
Hi Mary!
Mary Hill
Thank you!
Anonymous
 

GET INVOLVED

Interested in connecting with a larger community? We'd love to hear from you! Check out the number of ways to get involved.

Volunteer with us

Our volunteers are who were are. Volunteer today and join a 20 year strong community. There are many ways your skills can be used, everyone is welcome.

CommitteeEventsPeer SupportSocial MediaOther

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Find an event

CIPO has events across our chapters annually, be sure to see if we are coming to your town. If not, why not host your own event with our help!

Donate

Our vital services support the thousands of Canadians affected by PI. Learn how to help sustain these services and one of the many ways to donate.

Join CIPO today!

Become a member and become part of the only patient group for PI in Canada. Membership is free, receive newsletters, support and so much more.


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