Ragna Bertram

Executive Director

Ragna has been at the helm of Immunodeficiency Canada Network since 2014, infusing our mission with a powerful personal voice. With over a decade of advocacy experience, she is deeply committed to the well-being of the patient community.

Nelson Sabella

Programs Manager

Nelson brings over a decade of experience in crafting programs tailored to community needs. Beyond work, he finds joy in travel and exploring the great outdoors, seamlessly combining his professional and personal passions.

Gaby Deonne

Volunteer and Project Coordinator

With a background in social science research and community engagement in rare disorders, Gaby plays a pivotal role in implementing our strategic plan and coordinating volunteers. Outside of work, she finds joy in hiking, five rhythms dancing, African drumming, learning the clarinet, and solving cryptic crosswords.

Lianne Joelle

Administrative Assistant

Lianne serves as vital support for our team and members, handling events, meetings, travel, and more. She takes charge of creating and managing our website and social media content. Beyond the office, she coaches rowing on the lake for local youth and adults of all skill levels.

What We Champion For


Empowering Canadians affected by immunodeficiency disorders, we promote well-being through education, support, advocacy, community-building, and research initiatives.


Every Canadian affected by immunodeficiency disorders has access to the necessary resources for a thriving and fulfilling life.


  • Community
  • Empowerment
  • Excellence
  • Equity
  • Inclusiveness
  • Innovation

Our History

In the 1990s, a Canadian grappling with primary immunodeficiency (PI) sought connection but found no national representation. In response, they founded Immunodeficiency Canada Network in 1997 with support from the International Patient Organization for Primary Immunodeficiency (IPOPI). Originally named the Canadian Immunodeficiency Patient Organization (CIPO), we welcomed patients and caregivers nationwide. Joining the Network for Rare Blood Disorders Organization (NRBDO) early on, NRBDO aided our transition to charitable status.

For the first 15 years, dedicated volunteers led Immunodeficiency Canada Network. In 2014, Executive Director Whitney Goulstone joined, steering our expanding mandate. In our 25th year, strategic updates and a rebrand as Immunodeficiency Canada Network ushered in clarity and improved communication. Though our name changed in October 2022, our commitment remains steadfast. Daily, we empower Canadians with immunodeficiency disorders through education, support, advocacy, community-building, and research.

Immunodeficiency Canada Network, born from volunteers nationwide, continues to empower lives and build resilience within the immunodeficiency community.